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NCC Knowledge Nugget Series: X-ALD ACT Sheet

Date of Release: May 17, 2022
Expiration Date: May 31, 2024
Credits offered: CME
Estimate time of completion: 15 minutes 
Course must be completed by the expiration date

Course Description:

The ACMG ACT Sheets and Algorithms are a clinical decision support tool for non-genetics providers that describe the short term actions a health professional should follow in communicating with the family and determining the appropriate steps in the follow-up of the infant that has screened positive. To offer a more active and engaging educational opportunity to accompany the ACT Sheets, the National Coordinating Center for the Regional Genetics Networks (NCC) is launching the Knowledge Nugget Series. These quick sessions allow providers to review the existing ACT Sheets and provide a deep dive into a particular ACT Sheet through an animated video. The second video in the series is the Knowledge Nugget: X-ALD ACT Sheet.

Target Audience: Healthcare Providers, Public Health Professionals

Learning Objectives:

At the conclusion of this session, participants should be able to:
1.    Identify the purpose of the ACMG ACT Sheets.
2.    Describe how a newborn screening differs from a confirmatory test.
3.    List the next steps a provider should take once they receive an out-of-range newborn screening result for X-ALD.

NCC Funding Acknowledgement
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Cooperative Agreement #UH9MC30770 from 6/2020-5/2024 for $800,000 per award year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.

Contributor:

Amy Gaviglio, MS, CGC
Licensed Certified Genetic Counselor,
Connetics Consulting

Planning committee members:
Joann Bodurtha, MD, MPH, FACMG
Megan Lyon, MPH
Nancy Rose, MD, FACMG

Continuing Medical Education (CME AMA & CME Other)

Accreditation

The American College of Medical Genetics and Genomics is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
 
Credit Designation 
The American College of Medical Genetics and Genomics designates this enduring activity for a maximum of .25 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Claiming your Educational Credits
This activity consists of: View content, take a post-test, the test may be taken as often as necessary to achieve a passing score of 80% or better is required to receive credit.  If you do not achieve a passing score, the program will identify which questions you answered incorrectly so that you can review the module and try again. Complete the evaluation form.

Accredited Continuing Education Financial Disclosure

The American College of Medical Genetics and Genomics (ACMG) is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide Accredited Continuing Education (ACE) for physicians. ACMG is an organization committed to improvement of patient care and general health by the incorporation of genetics and genomics into clinical practice.

ACMG has implemented the following procedures to ensure the independence of ACE activities from commercial influence/promotional bias, the Accreditation Council for Continuing Medical Education (ACCME) requires that providers (ACMG) must be able to demonstrate that: 1) everyone in a position to control the content of an ACE activity has disclosed all financial relationships that they have had in the past 24 months with ineligible* companies; 2) ACMG has implemented a mechanism to mitigate relevant financial relationships; and 3) all relevant financial relationships with ineligible companies are disclosed to the learners before the beginning of the educational activity. The learners must also be informed if no relevant financial relationships exist.

*Ineligible companies are defined as those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

ACMG Education Policies
Please review the policies below regarding the ACMG Education program
•   Financial Disclosures and Mitigation Procedure 
•   ACMG Content Validation Policy
•   ACMG Content Branding Policy


All of the relevant financial relationships listed for these individuals have been mitigated. 

Name	Program Committee Member	Presenter/Panelist/Moderator	Financial Disclosure Relationship/Company
Bodurtha, Joann	X		Nothing to disclose.
Gaviglio, Amy	X	X	Nothing to disclose.
Lyon, Megan	X		Nothing to disclose.
Rose, Nancy	X		Nothing to disclose.

Disclaimer
ACMG educational programs are designed primarily as an educational tool for health care providers who wish to increase their understanding of the application of genomic technologies to patient care. The ACMG does not endorse or recommend the use of this educational program to make patient diagnoses, particular by individuals not trained in medical genetics. Adherence to the information provided in these programs does not necessarily ensure a successful diagnostic outcome. The program should not be considered inclusive of all proper procedures and or exclusive of other procedures and that are reasonably directed at obtaining the same results. In determining the propriety of any specific procedure or, a healthcare provider should apply his or her own professional judgment to the specific clinical circumstances presented by the individual patient or specimen.

Questions regarding CE credit should be directed to education@acmg.net