2022 New York Mid-Atlantic Caribbean Regional Genetic Network Annual Meeting: Expanding Access to Genetic Services: Sharing Strategies - Finding Solutions
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9 Courses
Expires on 08/15/2024
Credit Offered
9.75 CME (AMA) Credits
9.75 CME (Other) Credits

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Expanding Access to Genetic Services: Sharing Strategies - Finding Solutions

Date of Release: August 15, 2022

Expiration Date: August 15, 2024

Credits offered: CME

Estimate time of completion: 9.75 hours

Course must be completed by the expiration date


Course Description:

This session will outline the ways that NYMAC is using regional infrastructure building, education, and telehealth projects to improve patient access to genetic services across the region. Several key areas that offer new opportunities for engagement and collaboration with NYMAC, such as Jurisdiction Teams, a new website and social media, and supports for telegenetics, will be reviewed.


Learning Objectives:


At the conclusion of this session, participants should be able to:

  1. Summarize the current strategies being employed by NYMAC to improve patient access
  2. Identify opportunities for new collaborations between NYMAC and your organization

Target Audience:

Healthcare Providers, Public Health Professionals, Individuals/Families


NYMAC is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $2,400,000 with 0 percent financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.


The National Coordinating Center for the Regional Genetics Networks is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Cooperative Agreement #UH9MC30770 from 6/2020-5/2024 for $800,000 per award year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.

Alex Whitaker, MD, FAAP

Assistant Professor of Pediatrics

University of Maryland School of Medicine

Amanda de Leon, MS, CGC

Clinical Cancer Genetics

Moncrief Cancer Institute/UT Southewestern

Andy Cantor Ms, LGCG

Senior Genetic Counselor


Beth A. Tarini, MD, MS

Associate Director, Center for Translational Research, Children’s National Hospital

Associate Professor of Pediatrics, The George Washington University

Carolyn Applegate, MGC, CGC

Genetic Counselor Manager

Johns Hopkins University Department of Genetic Medicine

Cheyla Clark, MS, CGC

Genetic Counselor

University of Texas Southwestern Medical Center of Dallas, Moderator

Christen F. Crews, MSN, RN

Newborn Screening and Birth Defects Surveillance Programs Manager

Virginia Department of Health

Danielle Louder

Director, Northeast Telehealth Resource Center

Co-Director, MCD Public Health

Dieana Brand

Parent and Telegenetics User

Elinor Langfelder Schwind, M.S., C.G.C.

Senior Genetic Counselor

The Cystic Fibrosis Center

Mount Sinai Beth Israel

Icahn School of Medicine at Mount Sinai

Jeniffer Melendez

HHT advocate

Jennifer Cedeno, MS

Genetic Assistant

Johns Hopkins University Department of Genetic Medicine

Kadeem D'Shai Morgan

Patient Advocate



Kathy H. Wibberly, PhD

Director, Mid-Atlantic Telehealth Resource Center

Karen S. Rheuban Center for Telehealth, University of Virginia School of Medicine

Lloyd Sirmons

Director – Southeastern Telehealth Resource Center

Melissa K. Maisenbacher, MS, CGC

Certified Genetic Counselor

Associate Director, Clinical Projects


Michele Caggana, ScD, FACMG

Director, Newborn screening program

New York State Department of Health Wadsworth Center, moderator

Miranda Miller

Parent and Telegenetics User

Miriam Schachter, PhD

Program Manager, Newborn Screening Laboratory

New Jersey Department of Health

Molly Martzke

Senior Program Manager

National Genetics Education and Family Support Center at Expecting Health

Muin J. Khoury MD, PhD

Director, Office of Genomics and Precision Public Health

Centers for Disease Control and Prevention

Mylinda Massart, MD, PhD

Assistant Professor of Family Medicine

Director, UPMC Primary Care Precision Medicine Center

University of Pittsburgh

Natasha Shur, MD

Clinical Geneticist

Children's National Medical Center

RaeLynn Forsyth, MD

Medical Biochemical Genetics Fellow

UPMC Children's Hospital of Pittsburgh

Division of Genetic and Genomic Medicine

Scott Neal

ClinSeq Research Participant

Sikha Singh, MHS, PMP

Deputy Director, Newborn Screening and Genetics

Association of Public Health Laboratories

Suzanne Flynn


New York State

Zarifa Roberson

Entrepreneur & Advocate for the Disability Community

Planning Committee:

Patricia Bish, BS

Joann Bodurtha, MD, MPH, FACMG

Michele Caggana, Sc.D., FACMG

Luba Djurdjinovic, MS

Andrea Durst, MS, DrPH, LCGC

RaeLynn Forsyth, MD

Maria Isabel Frangenberg, BA

Oksana Kutsa, MS

Elisa Muñiz, MD, MS, FAAP

Melissa Raspa, PhD

Lisa Richard

Roseani Sánchez Algarín, MA

Alissa Bovee Terry, ScM, CGC

Jerry Vockley, MD, PhD, FACMG

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the American College of Medical Genetics and Genomics (ACMG) and NYMAC Regional Genetics Network. The ACMG is accredited by the ACCME to provide continuing medical education for physicians.


Credit Designation
The American College of Medical Genetics and Genomics designates this enduring activity for a maximum of 9.75 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Claiming your Educational Credits

This activity consists of viewing content, taking a post-test, and completing an evaluation. The test may be taken as often as necessary to achieve a passing score of 80% or better that is required to receive credit. If you do not achieve a passing score, the program will identify which questions you answered incorrectly so that you can review the module and try again.

Accredited Continuing Education Financial Disclosure

The American College of Medical Genetics and Genomics (ACMG) is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide Accredited Continuing Education (ACE) for physicians. ACMG is an organization committed to improvement of patient care and general health by the incorporation of genetics and genomics into clinical practice. ACMG has implemented the following procedures to ensure the independence of ACE activities from commercial influence/promotional bias, the Accreditation Council for Continuing Medical Education (ACCME) requires that providers (ACMG) must be able to demonstrate that: 1) everyone in a position to control the content of an ACE activity has disclosed all financial relationships that they have had in the past 24 months with ineligible* companies; 2) ACMG has implemented a mechanism to mitigate relevant financial relationships; and 3) all relevant financial relationships with ineligible companies are disclosed to the learners before the beginning of the educational activity. The learners must also be informed if no relevant financial relationships exist.

*Ineligible companies are defined as those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.


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All of the relevant financial relationships listed for these individuals have been mitigated.

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