Obtaining Funding from the Patient Centered Outcomes Research Institute (PCORI) and Utilizing a Recent PCORI Project to Better Support Black and Hispanic Parents of Children with Disabilities
Sponsored by the Education Committee
Image For Activity Cover
Availability
No future session
Expires on 07/18/2024
Cost
$0.00
Credit Offered
1 CME (AMA) Credit
1 CME (Other) Credit

Join us for Part Two of our captivating webinar series: "Translating Genes into Health®".

 

📅 June 18, 2024

 2:00 pm – 3:00 pm ET

  

🌐 How to Register:

  1. Click the "Register" button
  2. Navigate to the "Content" tab.
  3. Check your email, including your spam folder, for a confirmation message containing the access details for the webinar.

Title: Obtaining Funding from the Patient Centered Outcomes Research Institute (PCORI) and Utilizing a Recent PCORI Project to Better Support Black and Hispanic Parents of Children with Disabilities
Sponsored by The Education Committee

 

Description:

Learn about the Patient Centered Outcomes Research Institute and funding opportunities that can help clinicians better meet the needs of patients. Specifically, we will describe a project to improve the dissemination of research findings to Black and Hispanic parents first learning about a Down syndrome diagnosis. Further, we will provide the top eight recommendations for medical providers to improve diagnosis experiences and offer the research findings identified as most important by patients, health equity experts, and interdisciplinary medical professionals.

 

 

Target Audience: Geneticists, genetic counselors, and other medical professionals involved in delivering prenatal screening results and prenatal or postnatal diagnostic testing results for genetic conditions.

 

Agenda: 
Presentation followed by live Q&A. 

Topic

Presenter

Welcome and Introduction

 Natario Couser, MD, FACMG, and Kevin Mintz, PhD, MS 

Overview of PCORI and Potential Funding Opportunities (Dr. Meredith)

Stephanie Meredith, MA, DrPH

Overview of PCORI Project to Improve the Dissemination of Research to Black and Hispanic Parents o Children with Down Syndrome

Beth A. Pletcher, MD, FAAP, FACMG

Overview of Recommendations for Clinicians

Murugu Manickam, MD, MPH, FACMG

 

Learning Objectives

 

At the conclusion of this session, participants should be able to:

  1. Define the Patient Centered Outcomes Research Institute and associated funding opportunities.
  2. Describe differences in care that Black and Hispanic families have experienced in healthcare and their definitions as a positive or negative Down syndrome diagnosis experience.
  3. Identify resources and organizations available for you to share research findings with new and expectant parents of children with Down syndrome.

Moderators:

Natario Couser, MD FACMG

Kevin Mintz, PhD, MS, Postdoctoral fellow, Stanford University, Center for Biomedical Ethics


Presenters:

no image Stephanie Meredith, MA, DrPH, Director of the Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute
no image Murugu Manickam, MD, MPH, FACMG, Clinical Geneticist/Genomicist at Nationwide Children's Hospital 
Beth A. Pletcher, MD, FAAP, FACMG, Emeritus Professor, Rutgers New Jersey Medical School, Emeritus Professor, Rutgers New Jersey Medical School

 

Continuing Medical Education (CME AMA & CME Other)

 

Accreditation

The American College of Medical Genetics and Genomics is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

 

Credit Designation

The American College of Medical Genetics and Genomics designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

 

The American Medical Association (AMA) defines physicians as those individuals who have obtained an MD, DO, or equivalent medical degree from another country. Non-physicians may request a certificate of attendance for their participation.

 

Claiming your Educational Credits

Complete the activity and carefully complete the evaluation form. The deadline to claim educational credits is within 30 days of the date of the activity. Educational credit requests after this date will not be accepted.

 

Learner Data Consent

ACMG Education reports learner data to respective agency boards and you will be asked for consent during the evaluation process. Your compliance with deadlines and completing evaluations are part of the process in meeting learner needs and ACMG’s education mission.

Accredited Continuing Education Financial Disclosure

The American College of Medical Genetics and Genomics (ACMG) is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide Accredited Continuing Education (ACE) for physicians. ACMG is an organization committed to improvement of patient care and general health by the incorporation of genetics and genomics into clinical practice.

 

ACMG has implemented the following procedures to ensure the independence of ACE activities from commercial influence/promotional bias, the Accreditation Council for Continuing Medical Education (ACCME) requires that providers (ACMG) must be able to demonstrate that: 1) everyone in a position to control the content of an ACE activity has disclosed all financial relationships that they have had in the past 24 months with ineligible* companies; 2) ACMG has implemented a mechanism to mitigate relevant financial relationships; and 3) all relevant financial relationships with ineligible companies are disclosed to the learners before the beginning of the educational activity. The learners must also be informed if no relevant financial relationships exist.
*Ineligible companies are defined as those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

 

ACMG Education Policies

Please review the policies below regarding the ACMG Education program

 

All of the relevant financial relationships listed for these individuals have been mitigated.

 

Name

Role

Relationship/Company

Claudia Barnett

Planning Member

No Relevant Financial Relationships

Natario Couser

Moderator

No Relevant Financial Relationships

Murugu Manickam

Presenter

No Relevant Financial Relationships

Stephanie Meredith

Planning Member / Presenter

No Relevant Financial Relationships

Kevin Mintz

Co-Moderator

No Relevant Financial Relationships

Beth A. Pletcher

Presenter

No Relevant Financial Relationships

Jane Radford

Planning Member

No Relevant Financial Relationships

Colleen Whelan

Planning Member

No Relevant Financial Relationships


Questions regarding CE credit should be directed to education@acmg.net

© 2024 American College of Medical Genetics and Genomics. All rights reserved.

Powered By