Obtaining Funding from the Patient Centered Outcomes Research Institute (PCORI) and Utilizing a Recent PCORI Project to Better Support Black and Hispanic Parents of Children with Disabilities

Date of Release: July 2, 2024

Expiration Date:  July 2, 2026

Credits offered: CME, P.A.C.E.®

Estimate time of completion: 1 hour per webinar

Course must be completed by the expiration date

www.acmgeducation.net

Description:

Learn about the Patient Centered Outcomes Research Institute and funding opportunities that can help clinicians better meet the needs of patients. Specifically, we will describe a project to improve the dissemination of research findings to Black and Hispanic parents first learning about a Down syndrome diagnosis. Further, we will provide the top eight recommendations for medical providers to improve diagnosis experiences and offer the research findings identified as most important by patients, health equity experts, and interdisciplinary medical professionals.

Target Audience: Geneticists, genetic counselors, and other medical professionals involved in delivering prenatal screening results and prenatal or postnatal diagnostic testing results for genetic conditions.

Learning Objectives

At the conclusion of this session, participants should be able to:

1. Define the Patient Centered Outcomes Research Institute (PCORI) and associated funding opportunities.
2. Describe differences in care that Black and Hispanic families have experienced in healthcare and their definitions as a positive or negative Down syndrome diagnosis experience.
3. Identify resources and organizations available for you to share research findings with new and expectant parents of children with Down syndrome.

Moderators:

Natario Couser, MD FACMG

Kevin Mintz, PhD, MS, Postdoctoral fellow, Stanford University, Center for Biomedical Ethics


Presenters:

	Stephanie Meredith, MA, DrPH, Director of the Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute
	Murugu Manickam, MD, MPH, FACMG, Clinical Geneticist/Genomicist at Nationwide Children's Hospital
	Beth A. Pletcher, MD, FAAP, FACMG, Emeritus Professor, Rutgers New Jersey Medical School, Emeritus Professor, Rutgers New Jersey Medical School

Continuing Medical Education (CME AMA & CME Other)

Accreditation

The American College of Medical Genetics and Genomics is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

Credit Designation

The American College of Medical Genetics and Genomics designates this enduring activity for a maximum of 1.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

The American Medical Association (AMA) defines physicians as those individuals who have obtained an MD, DO, or equivalent medical degree from another country. Non-physicians may request a certificate of attendance for their participation.

Claiming your Educational Credits

This activity consists of: View content, take a post-test, the test may be taken as often as necessary to achieve a passing score of 80% or better is required to receive credit.  If you do not achieve a passing score, the program will identify which questions you answered incorrectly so that you can review the module and try again. Complete the evaluation form.

Learner Data Consent

ACMG Education reports learner data to respective agency boards and you will be asked for consent during the evaluation process. Your compliance with deadlines and completing evaluations are part of the process in meeting learner needs and ACMG’s education mission.

Accredited Continuing Education Financial Disclosure

The American College of Medical Genetics and Genomics (ACMG) is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide Accredited Continuing Education (ACE) for physicians. ACMG is an organization committed to the improvement of patient care and general health by the incorporation of genetics and genomics into clinical practice.

ACMG has implemented the following procedures to ensure the independence of ACE activities from commercial influence/promotional bias, the Accreditation Council for Continuing Medical Education (ACCME) requires that providers (ACMG) must be able to demonstrate that: 1) everyone in a position to control the content of an ACE activity has disclosed all financial relationships that they have had in the past 24 months with ineligible* companies; 2) ACMG has implemented a mechanism to mitigate relevant financial relationships; and 3) all relevant financial relationships with ineligible companies are disclosed to the learners before the beginning of the educational activity. The learners must also be informed if no relevant financial relationships exist.
*Ineligible companies are defined as those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

ACMG Education Policies

Please review the policies below regarding the ACMG Education program

• Financial Disclosures and Mitigation Procedure
• ACMG Content Validation Policy
• ACMG Content Branding Policy

All of the relevant financial relationships listed for these individuals have been mitigated.

Disclaimer

ACMG educational programs are designed primarily as an educational tool for health care providers who wish to increase their understanding of the application of genomic technologies to patient care. The ACMG does not endorse or recommend the use of this educational program to make patient diagnoses, particular by individuals not trained in medical genetics. Adherence to the information provided in these programs does not necessarily ensure a successful diagnostic outcome. The program should not be considered inclusive of all proper procedures and or exclusive of other procedures and that are reasonably directed at obtaining the same results. In determining the propriety of any specific procedure or, a healthcare provider should apply his or her own professional judgment to the specific clinical circumstances presented by the individual patient or specimen.

Questions regarding CE credit should be directed to education@acmg.net