ACMG Education Workgroups-Promise and Perils of Voluntary Workplace Genetic Testing

Promise and Perils of Voluntary Workplace Genetic Testing

Pdf Summary

The document reports on feedback and survey results from the educational course "Promise and Perils of Voluntary Workplace Genetic Testing." Overall, participant responses indicate high levels of interest and engagement with the topic, characterized as intriguing and well-presented. A major theme emerging from the survey responses is a general lack of prior awareness concerning the prevalence and nature of workplace genetic testing (wGT). Most participants expressed concerns about privacy, notably regarding employers learning test results, and highlighted the need for pre-test counseling. There is a significant gap in understanding the Genetic Information Nondiscrimination Act (GINA), illustrating the need for more education on legal protections, ethical practices, and the implications of voluntary workplace genetic testing.<br /><br />The survey responses reveal diverse opinions on the application and ethical considerations of workplace genetic testing. Some see potential benefits, like using genetic testing in decision-making or educational programs, while others remain cautious, showing hesitation about immediate practical application—only maintaining awareness seems prudent for some. Concerns about inadequate pre-test counseling and limitations on interpreting test results highlight issues that require addressing, especially in the context of privacy and potential insurance implications.<br /><br />Despite the interest, a notable portion of participants would prefer conducting such genetic testing privately, citing privacy concerns. Feedback suggests that while the course is informative, there is a critical need to enhance education on the practical and ethical considerations of wGT, addressing privacy concerns and encouraging informed decision-making. Responses also reflect a mix of curiosity and skepticism from professionals who may not see direct applicability in their current practice, indicating value in raising awareness over implementing genetic testing in workplace settings.

Keywords

workplace genetic testing

privacy concerns

Genetic Information Nondiscrimination Act

pre-test counseling

ethical considerations

survey feedback

educational course

legal protections

informed decision-making

awareness