Genomics-Informed Government Policy: Starting the Conversation with Policymakers-Presentation Slides

Presentation Slides

Pdf Summary

The American College of Medical Genetics and Genomics (ACMG) hosted a webinar titled "Genomics-Informed Government Policy: Starting the Conversation with Policymakers" on August 19, 2025, sponsored by the ACMG Advocacy and Government Affairs Committee. This session aimed to educate clinical geneticists, counselors, laboratory professionals, researchers, and healthcare providers about effective engagement with policymakers to promote science-based, equitable genomics policies.<br /><br />The webinar focused on strategies for fostering relationships between genomic professionals and government officials at various levels, emphasizing the importance of clear, data-driven advocacy. Key learning objectives included understanding advocacy approaches, contributing to policy development grounded in equity and science, and navigating common challenges in science-policy interactions.<br /><br />Distinguished speakers included Senator Daniel Zolnikov (Montana State Legislature), Dr. Heather E. Williams (GeneBetween), Karen Robinson (Yale School of Medicine), Chris Kelly (BGR Group), and Dr. Julie Neidich (Washington University in St. Louis). The presenters highlighted the evolution of federal genomics policy, underscoring the economic benefits of genomics investments such as newborn screening and orphan drug development. They discussed messaging that emphasizes measurable outcomes, cost savings, and competitiveness, and encouraged diverse, bipartisan advocacy approaches anchored in established federal advisory processes.<br /><br />The webinar also stressed the importance of centering health equity, noting that equitable genetic testing reduces healthcare costs by enabling earlier diagnoses. Participants were encouraged to track relevant metrics and incorporate equity standards into public-private partnerships.<br /><br />Attendees were engaged with polling questions regarding prior advocacy experience, perceived barriers, and target policymaker audiences. The session offered continuing medical education (CME) credits and provided access to a recording via the ACMG Genetics Academy.<br /><br />Resources shared included ACMG policy statements, advocacy tools, and contact information for elected officials to facilitate ongoing engagement. The session highlighted the critical role genomics professionals play in shaping durable, impact-driven government policy that integrates scientific innovation with public health goals.

Keywords

Genomics Policy

Advocacy Strategies

Health Equity

ACMG Webinar

Government Engagement

Clinical Genetics

Policy Development

Science-Based Advocacy

Newborn Screening

Public-Private Partnerships