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Hereditary Cancer Testing: How Do We Scale Access, ...
Hereditary Cancer Testing: How Do We Scale Access, Improve Uptake and Equity?
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The feedback from participants on the educational activity regarding Hereditary Cancer Testing highlights several key areas of focus, with an overall positive reception. Many respondents found the concept of parent-of-origin genomic analysis particularly noteworthy, indicating it as a standout topic in terms of its novelty and the depth with which it was presented. Concerns about inequities and barriers in accessing hereditary cancer testing were consistently highlighted, underlining these as persistent challenges within the field.<br /><br />Attendees valued learning about innovative approaches to increasing uptake and engagement through digital tools, focused on improving access and equity. Moreover, the average scores given to presenters like Alanna Rahm, Kelly Metcalfe, and Kasmintan Schrader were high (around 4.6 out of 5), indicating effective and engaging presentations with balanced and unbiased content.<br /><br />Ethical considerations in testing non-consenting individuals and the role of genetic counselors in contacting family members were raised, suggesting potential areas for further discussion and clarification in future sessions. Participants from diverse roles, including lab directors and hereditary cancer researchers, discussed applying the learning to practice, which implies an actionable commitment to equity and an integration of course learnings into both current and future research.<br /><br />In summary, while the session was highly valued for its insightful presentations and practical content, the feedback suggests future courses could benefit from further exploration into ethical aspects of genetic testing, reinforcing a commitment to equitable access and patient privacy.
Keywords
Hereditary Cancer Testing
Parent-of-Origin Genomic Analysis
Inequities in Access
Digital Tools for Engagement
Ethical Considerations
Genetic Counselors
Equitable Access
Innovative Approaches
Educational Activity
Genomic Analysis
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