2024 Community, Outreach and Engagement -The Genetics of Disability Rights & Ethics - A COE Committee Sponsored Session-The Genetics of Disability Rights & Ethics

Video Transcription

Video Summary

The video discusses the importance of representation of individuals with disabilities and genetic conditions in genetics and genetic counseling, emphasizing the lack of diversity and need for inclusive conversations and training programs. Presenters advocate for disability rights, health equity, and combating ableism in healthcare, stressing the impact of biases and societal barriers. Strategies are proposed to challenge ableism, rethink disability approaches, and promote inclusive practices. Ethical considerations, empowerment of disabled individuals, and shifting towards a non-curative approach in medicine are highlighted. The discussion delves into respecting autonomy in decision-making related to disability, challenging stigmas, and promoting patient-centered care. They address ableism in the medical field, the importance of inclusive resources, and professionals being aware of disability hierarchies. Supporting disabled individuals in reproductive services and ethical dilemmas in genetics is also touched upon. The overarching goal is to foster equity, representation, and advocacy for individuals with disabilities in healthcare systems, emphasizing understanding diverse experiences, combatting societal perceptions, and enhancing quality of life.

Keywords

representation

individuals with disabilities

genetics

genetic counseling

diversity

inclusive conversations

training programs

disability rights

health equity

ableism

ethical considerations

autonomy

patient-centered care