2023 ACMG Annual Clinical Genetics Meeting Digital Edition: Poster Gallery-Disseminating Genetics Policy Information on Social Media

Pdf Summary

The National Coordinating Center for the Regional Genetics Networks (NCC) uses social media platforms like Twitter to disseminate information on genetics policy. The NCC, a cooperative agreement between the Health Resources and Services Administration (HRSA) and the American College of Medical Genetics and Genomics (ACMG), aims to improve access to genetic services for underserved populations. They share proposed legislation and regulations related to genetics at the state and federal level on Twitter using FiscalNote. Additionally, they launched a weekly wrap-up of genetics policy tweets in April 2022, which is posted on their Genetics Policy Hub (GPH) Twitter and NCC's LinkedIn page. Subscriptions for receiving the wrap-up via email are also available.<br /><br />The project is supported by HRSA under Cooperative Agreement #UH9MC30770 from 6/2020-5/2024 with an award of $800,000 per year. The content and conclusions in the information are the author's and not necessarily representative of the official position or policy of HRSA, the U.S. Department of Health and Human Services (HHS), or the U.S. Government.<br /><br />Common topics for tweets about federal and state genetics legislation with 400+ impressions were related to licensure for genetic counselors, health insurance coverage, and genetic privacy. The tweet with the highest engagement rate received 64 impressions and 12 engagements, resulting in 4212 profile visits and 29 new followers.

Asset Subtitle

Presenting Author - Molly Caisse, MPH; Co-Author - Megan Lyon, MPH;

Meta Tag

Education

Policy Issues

Co-Author Megan Lyon, MPH

Presenting Author Molly Caisse, MPH

Keywords

NCC

Twitter

genetics policy

HRSA

ACMG

access to genetic services

legislation

FiscalNote

Genetics Policy Hub

engagement rate