2023 ACMG Annual Clinical Genetics Meeting Digital Edition: Poster Gallery-Comparing Genetics Policies in State Medicaid Programs in 2022 versus 2021

Pdf Summary

The National Coordinating Center for the Regional Genetics Networks (NCC) is responsible for improving access to genetic services for underserved populations in the US. They track and report information on genetics policy, including coverage of genetic services in Medicaid. The NCC maintains the State Medicaid Genetics Policies Database, which shares information on what Medicaid programs cover related to genetic services. Each year, the NCC reviews each state's Medicaid program website to gather publicly available information on coverage of genetic services.<br /><br />The database shows that 60% of Medicaid programs have policies regarding the coverage of genetic testing. Additionally, 53% of states have written genetics policies publicly available. Comparing the data from 2022 to 2021, there are various percentages of policies related to genetic testing and screening, prior authorization requirements, coverage of medical foods, regulation of genetic testing or screening, genetic counseling, BRCA testing, prenatal testing/screening, hereditary cancer testing, Lynch Syndrome testing, and pharmacogenetic testing.<br /><br />The analysis of the State Medicaid Genetics Policies Database reveals that some states have more comprehensive genetics policies compared to others. The database serves as a resource for healthcare providers to understand what their state's Medicaid program covers and helps states without written genetics policies to understand how genetic services are covered by other states. By increasing the coverage of genetic services in Medicaid programs, individuals and families who rely on Medicaid for health insurance can access these services when needed.<br /><br />The summary also mentions a clickable map that allows users to explore their state's Medicaid policies and provides an example from Utah's State Medicaid Page.

Asset Subtitle

Presenting Author - Megan Lyon, MPH; Co-Author - Myy Nguyen; Co-Author - Molly Caisse, MPH; Co-Author - Susanna Ginsburg, MSW; Co-Author - Allyson Baughman, PhD, MPH;

Meta Tag

Education

Policy Issues

Co-Author Myy Nguyen

Co-Author Molly Caisse, MPH

Co-Author Susanna Ginsburg, MSW

Co-Author Allyson Baughman, PhD, MPH

Presenting Author Megan Lyon, MPH

Keywords

genetic services

Medicaid coverage

State Medicaid Genetics Policies Database

genetic testing

genetic screening

prior authorization requirements

genetic counseling

BRCA testing

prenatal testing

healthcare providers