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2023 ACMG Annual Clinical Genetics Meeting Digital ...
Adolescents' State Anxiety and Decisional Regret O ...
Adolescents' State Anxiety and Decisional Regret One Week After Learning Carrier Results for Autosomal Recessive Disorders
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The document is a summary of a study conducted on adolescents who chose to learn carrier results for autosomal recessive disorders. The study aimed to examine anxiety and decision regret in these adolescents one week after receiving the results.<br /><br />The study found that nearly all adolescents chose to learn carrier results. The percentage of adolescents reporting high state anxiety increased from baseline to one week post-return of results, both in those who received negative results and those who received carrier results. The presence of baseline moderate and high state anxiety among adolescent participants in genomic research was highlighted as an area for future exploration.<br /><br />Overall, decision regret scores were low in both groups of adolescents. The decision regret scale used in the study indicated that scores above 25 indicate moderate to high regret. The study also mentioned that further qualitative interviews will be conducted within 12 months after the return of results to explore state anxiety and decision regret further.<br /><br />The study used an electronic decision tool for participants to select their preferences on learning carrier results and results for various conditions. The scale used to measure decision regret contained five items, while the state anxiety scale had six items.<br /><br />Next steps mentioned in the document include considering other factors such as General Anxiety Disorder Scale scores and conducting qualitative and quantitative analyses to further understand the meaning of decision regret scores in adolescents receiving genomic research results.<br /><br />The document also provides information on the characteristics of the adolescents who participated in the study and the distribution of their results. It notes that 143 out of 149 adolescents chose to learn carrier results.<br /><br />In conclusion, the preliminary results of the study suggest that there is an increase in state anxiety following the receipt of carrier results among adolescents. However, decision regret scores were low overall. The study plans to conduct further analyses and interviews to gain a better understanding of anxiety and decision regret in this population.
Asset Subtitle
Presenting Author - Cynthia A. Prows, MSN, APRN; Co-Author - Michelle L. McGowan, PhD; Co-Author - Amy Blumling, PhD; Co-Author - William B. Brinkman, MD, MEd, MSc; Co-Author - Kristin Childers-Buschle, MSc; Co-Author - Kevin Dufendach, MD, MS; Co-Author - Ellen A. Lipstein, MD, MPH; Co-Author - Melanie F. Myers, PhD, MS;
Meta Tag
Counseling
Ethical Legal and Social Issues
Genetic Testing
Population Genetics
Risk Assessment
Co-Author
Michelle L. McGowan, PhD
Co-Author
Amy Blumling, PhD
Co-Author
William B. Brinkman, MD, MEd, MSc
Co-Author
Kristin Childers-Buschle, MSc
Co-Author
Kevin Dufendach, MD, MS
Co-Author
Ellen A. Lipstein, MD, MPH
Co-Author
Melanie F. Myers, PhD, MS
Presenting Author
Cynthia A. Prows, MSN, APRN
Keywords
adolescents
carrier results
autosomal recessive disorders
anxiety
decision regret
state anxiety
baseline
genomic research
electronic decision tool
qualitative interviews
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